Cerebral Palsy

The Thing About CP

For those of you who don’t know, cerebral palsy is a neurological disorder that affects movement and posture. For some, effects can be severe, but for others, it’s more mild. I’m blessed to be on the more mild end of the spectrum; for me, it affects the way I get around. I’ve used a walker and worn calf-high braces since I was little, and weekly physical therapy is routine.

I try to have the perspective that my disability is a way for me to inspire others and impact lives; it’s a platform the Lord has given me to spread His Light and Love. While that is the way I look at it, there are days when I lose perspective and end up crying, because the frustration has become too much. Like when I see my dad get ready to run, and wish I could go with him but can’t. Or when I wake up, and taking a step sends throbbing pain through my feet. Or on the days when I’m so tight, I feel like I can barely move.

But here’s the thing about CP. It is an it. It’s a thing; it’s not me. It doesn’t define me or who I am, and it may affect the way I get around, but it will not affect the way I live my life. I want to be known for lighting up a room; I want to be the reason someone’s day is brighter. I want to inspire others and make an impact, and be known for that. Not my disability.

So here’s the thing: I may have cerebral palsy, but cerebral palsy does not have me.

16 thoughts on “The Thing About CP”

  1. I love this! The blog is such a wonderful idea. I look forward to reading more. One of my sisters has Cerebral Palsy more on the severe side. It cool to hear your perspective.
    On another note, I write as well and I am working on a book too. I look forward to reading about your process. If you need any help along the way be sure to let me know I will share what I know and have learned.

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    1. Felecia, I’m so sorry!! I just realized I never responded to this! But thank you so much! 😊

      Thank you!! I will definitely keep that in mind!

      I hope you’re having a marvelous Monday!

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  2. Beautiful perspective…looking outward to Jesus and not inward to our limitations. I developed neuropathy in my right foot and leg about 5 years ago…and now walk with a limp. Have to lift both legs higher in an exaggerated walk in order to not trip and fall.

    Even though I probably look funny when I walk…and I see the quick glances of people…I do not give it a second thought now.

    If your heart’s desire is to be a light wherever you go…the Holy Spirit will honor this and bring it to pass. God bless you.

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    1. I’m so sorry- I saw the message and meant to reply but totally forgot!! Thank you for thinking of me though!! I love your blog; you help me stay up to date with everything!!

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      1. Have a couple extra shirts in size small and medium. Would either of those fit ok If so I’d love to give it to you. If not, I will remember for next time.
        Thanks for all the support. I really do appreciate it!

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  3. Hey Robyn! I’m writing a story for my Reporting class and would love to feature you in it. I think it would be amazing to write about you and what you stand for. Let me know!

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