Cerebral Palsy

The Thing About CP

For those of you who don’t know, cerebral palsy is a neurological disorder that affects movement and posture. For some, effects can be severe, but for others, it’s more mild. I’m blessed to be on the more mild end of the spectrum; for me, it affects the way I get around. I’ve used a walker and worn calf-high braces since I was little, and weekly physical therapy is routine.

I try to have the perspective that my disability is a way for me to inspire others and impact lives; it’s a platform the Lord has given me to spread His Light and Love. While that is the way I look at it, there are days when I lose perspective and end up crying, because the frustration has become too much. Like when I see my dad get ready to run, and wish I could go with him but can’t. Or when I wake up, and taking a step sends throbbing pain through my feet. Or on the days when I’m so tight, I feel like I can barely move.

But here’s the thing about CP. It is an it. It’s a thing; it’s not me. It doesn’t define me or who I am, and it may affect the way I get around, but it will not affect the way I live my life. I want to be known for lighting up a room; I want to be the reason someone’s day is brighter. I want to inspire others and make an impact, and be known for that. Not my disability.

So here’s the thing: I may have cerebral palsy, but cerebral palsy does not have me.

My Writing · thoughts

Why I Write

In honor of today being National Writing Day, I thought I’d share why I write.

I write because I have to. For me, writing is as necessary as breathing. It’s how I process life; it’s how I handle the crazy, wild emotions that come with being a teenager. When I’m able to lay my thoughts and feelings on a page, the weight they once laid on my shoulders disintegrates. Writing allows me to breathe and gives me a way to heal.

I write because the characters within me deserve a voice. Since I was little, I’ve had characters and storylines dancing in my head, and when I was six years old I decided it was time to set them free. I wrote my first story about the friendship between two horses (I was little) and I haven’t looked back. For a time, I wrote stories using the characters from my favorite books, but now, my characters are all my own. Often, they- and the storylines I pen- are based off of my own life, and to me, there’s nothing better than turning a fragment of my life into fiction. Usually the inspiration comes from a situation I’ve been through or a person who has touched my heart, and on the occasions when it’s the former, I feel like I’ve put a message in a bottle: “You thought nothing of this, but I did. I appreciated it. I was touched. It meant more to me than you know, and I wanted to tell you that.”

I write to tell my story. In the past few years, I’ve realized just how powerful sharing my story can be, and if I’m ever asked to speak, I write out what I want to say. I feel like I make more sense when I write than when I talk, and I think I can leave a bigger impact on an audience if I’ve been able to write out what I’m saying beforehand. Sharing my story is a big part of why I’ve started blogging: because I want to show what life with cerebral palsy is really like, and also to show that while I may have a disability, I experience life the same way everyone else does.

I write to say things I otherwise wouldn’t be able to say otherwise. I can’t count how many times words have burned in the back of my throat, but fear has kept them in. To fight that fear, I pick up a pen and write every word I wish I could say in person. Then, I can say what I need to say without fear of what the other person will think, and more than once, doing that has given me the courage to actually say the words in person.

I write to overcome my limitations. When I write, I can walk, I can run, I can play sports, I can dance. When I write, anything my disability prevents me from doing is possible. I write to be free, and that freedom is unlike anything else.


Tell me: why do you write?

My Writing

WordPress Daily Post: Brave

You, beautiful girl, are brave.

You are brave

Because of the battles you fight,

So positively and courageously

Where many would fold,


And fall apart,

You smile.

You smile and shine

Like the brightest rays of sun

You shine

Unlike anyone else I’ve ever met

Despite the fact

That you are miles away

I still feel your light

And your love.

You are all around me,

You protect me,

You guide me,

You make me smile.

You taught me what life is really about:

Loving one another,

And smiling,

No matter how much it hurts

Or how hard things get.

Because that’s what you did

So beautifully

So courageously



Dedicated with love to my friend Kate.

Bible Verses · Cerebral Palsy · Faith

Giving In, and Gaining Freedom

For years, my parents and therapists have tried to convince me to use a wheelchair around the house and for longer distances. “That way, you can carry things, you won’t be afraid to fall, and you won’t be worn out and exhausted by the time you get wherever you’re going.” And for years, I’ve fought them, because I feared that if I began using a wheelchair, I would lose my strength. But more than that, in my mind, to use a wheelchair was to relinquish the independence I did have, and I was not about to give that away.

But then, last weekend happened. My family and I went to Gainesville for UF’s homecoming weekend, and there, God showed me two things: in order to navigate that campus, I’ll have to use a wheelchair, and He showed me that He’ll use me and my disability to bring honor and glory to Him.

I spent the morning standing at SEC Nation, taking in the sights and sounds of the pregame show. As much as I loved every second of it, before long, my legs and feet began to ache. It’s a two hour show, and by the time it ended, the pain had become much more intense. However, my family and I had planned to go to the Gator Walk (which was a nice hike from where Nation had set up) and there was no way I was missing that. So I pushed through the pain and walked. The Lord used that trek to show me just how amazing He is.

At one point, a young woman complimented my Florida shirt. Her kind words brightened my day and distracted me from the pain. I thanked her, grateful for the compliment. Not long after we arrived at the Gator Walk, she came up to me again, and asked if I was Robyn. When I said yes, a huge smile crossed her face. She told me she’d heard my story through the Tim Tebow Foundation, and that I was an inspiration. I was touched and blown away. I told her thank you, thinking that those words didn’t come close to expressing how much that meant to me. She had no idea how many times in the last month I’d broken down and cried because I felt so defined and frustrated by my disability and the things I couldn’t do. So many times I’d felt like my CP was a chain around me that I couldn’t break, yet here she was telling me she was inspired by the way I lived through it. She reminded me that our God is so powerful that He’ll use something that I was frustrated by to inspire someone I’d never even met.

We left the Gator Walk and went to lunch, and my father, knowing I was hurting and tired, offered to put me on the back of my walker and push me. Because I’m stubborn, I wouldn’t let him. By the time we got to the restaurant, I was overheated and each sent a searing pain through my feet. As I took a seat and tried to cool off, I realized that maybe my parents and therapists had been on to something when they suggested I use a wheelchair. Was using my walker worth being in pain for the rest of the day? Did I really want to be worn out this way every day?

The answer is no, so this morning, I gave in and got out the wheelchair. I’m not sure how long I spent wheeling around in it and trying to figure out how to maneuver it around the house, but by the time I stopped, I realized they’d been right. Yes, my arms were a little sore from pushing it, but a power assisted device would fix that. And I was able to stand up at my bathroom sink and brush my own hair without being consumed by fear.

But perhaps most importantly, I felt more independent. For so long, “independence” has felt like a daunting mountain that I’ll never be able to reach the top of, and today, in that chair, that mountain suddenly seemed climbable. I no longer felt defined or controlled by my CP, and for that, I’ll never fight my therapists or parents on this issue again. I still have a lot of things to figure out and a long way to go before I’m completely independent, but like 2 Samuel 22:40 says, God’s armed me with the strength to win this battle, and He’ll be with me the whole way.



Sometimes, God puts people in your life who are complete blessings. They’re encouraging and uplifting and they’re people you can always count on to be there for you, no matter what’s going on. My friend Alexis is one of those blessings, and today, I thought I’d share about something incredible she’s doing.

She is, in one word, amazing. In addition to being incredibly kind and an incredible friend, she has a heart of gold and the most beautiful faith. I’m continually blown away by her heart for serving Jesus and serving others. A few months ago, she wrote her own devotional, entitled “Ascend”, and shared Scripture and encouragement with subscribers each day. She called it “Ascend” because it focused on how each of us are climbing our own mountain, and God carries us as we ascend. He’s with us when we’re at the very bottom, He’s with us as we climb and He’s there when we’ve reached the top. She wrote beautifully, and I always felt encouraged after reading each day.

Now, she’s ascending a literal mountain: her dream is to climb Mount Kilimanjaro in February to raise money for the Tim Tebow Foundation. For months, she’s organized events to fund her climb, working tirelessly to find sponsors and raise the necessary funds to embark on the journey. I’ve been so inspired by her dedication, and today, she shared with me one way that the Lord has blessed her efforts. A few weeks ago, she entered the “Chip-Starter” contest, sponsored by Chip Gaines of Fixer Upper, where he offered to invest in two people’s dreams. Contestants had to submit a two minute video explaining their dream and why he should invest in it, and from there, four finalists would be chosen to go to Waco and pitch their dream to Chip in person. Alexis told me this morning she was chosen as a finalist! The news made my day. She’s so deserving, and I’m so proud of her and everything she’s doing.

Please keep her in your prayers as she travels to Waco: for safety as she travels, for her to feel calm as she takes the stage to talk to Chip, and that regardless of the outcome, the Lord would be glorified. He has already used Alexis in amazing ways, and I can’t wait to see how He will continue to work through her.


God Truly is in Control

To put it lightly, last week has been a roller coaster. I was so overwhelmed by college applications, schoolwork, and extracurricular activities…. the best way I can describe it is I felt like I was carrying a weight on my shoulders that I couldn’t breathe through. But as He always does, God carried me through and reminded me that He’s in control, and His plan is good and perfect.

I saw time and time again how powerful prayer is. I’m a member of our school’s Refuge Prayer Club, which meets once a week to pray and just relax in His presence before the school day begins. A friend and I both shared how we’ve been stressed and overwhelmed, and the teachers who sponsored it prayed over us, asking for His guidance as we figure out where to go for college and that we would continue to seek Him in all that we do. I opened my mouth to pray, but found myself too overcome with emotion to say so much as “thank you”. Their prayer brought me peace and gave me the strength I needed to make it through the day.

Wednesday was See You at the Pole, and it was amazing to see so many people gather to lift praise and prayer up to Him. With cars passing by and students making their way into the building, we formed a circle and one by one prayed, over each other, the school, and our nation. I felt His presence and, during those few minutes, the serenity I’d been trying so desperately to find.

Sunday, I was reminded of His goodness and perfect plan in another way: the date. It was October 1st, which marked the two year anniversary of the beginning of my W15H with Tim Tebow. Thinking about the journey which led to that magical weekend reminded me that He orchestrates each detail, no matter how small it may seem to us. This whole thing began when my sister’s softball coach told my family and I about a camp for kids with special needs she volunteers at each summer. She invited me, and my counselor, Allison, and I immediately hit it off. We’ve stayed in touch and become good friends, and I mentioned to her once that Timmy is my inspiration and it was my dream to one day meet him and tell him that. Somehow, she remembered, and when the opportunity arose to go to his foundation’s golf classic, she brought me with her as a surprise birthday present. I’m still amazed that somehow, amidst the crowd, he saw me and took time to come over and talk with me. I’ll never forget what it felt like to look at him and say, “You inspire me so much” and it was such a blessing to be able to share my story with him for just a few minutes. He impacted my life in such a profound way in just a few minutes, but little did I know, our story didn’t end there.

In becoming a part of the TTF family I’ve made friends and memories I’ll have for the rest of my life. They’re blessings I thank God for every day, and they’re living reminders that the Lord does indeed establish our steps, and He has each and every detail planned, no matter how small and insignificant it may seem to us.

Cerebral Palsy

The Lesson Homecoming Court Taught Me

It’s homecoming week at my high school, and I’m honored to be on our homecoming court as a representative for our senior class. I was on court last year, too, and as Friday draws closer, I’ve been thinking back on my experience last year and everything I learned from it.

To be honest, when my name was announced last year as part of the homecoming court, I thought I’d either misheard the announcements or something had been announced wrong. I couldn’t believe it. But when my phone began to be flooded with texts from friends congratulating me, I realized that maybe I hadn’t been hearing things, after all.

While I was beyond excited and honored to be on the court, I also knew I had an interesting journey ahead of me. Part of our school’s homecoming festivities on the day of the game is a parade around the school- and by “around” I mean we walk down every single hallway in the building in about twelve minutes. I’d gotten to walk in it freshman year, but by the time I’d walked about half the route I was too exhausted and worn out to finish it. In my mind, there was no question whether or not I’d walk the whole thing this time: it was happening, no matter how tired I got. My physical therapist didn’t think the same way, though. “I don’t know whether you can handle both the parade and the football field,” she said.

I just shook my head. “I’m going to do this,” I said. In that moment, homecoming became about something else: proving her wrong.

So I practiced. Every day, I’d leave my third block early and walk the route, having whoever was with me clock me so I knew how fast I’d walked and how much faster I needed to be. By the time I finished, I’d be red-faced and feel like I was about to collapse, but slowly, I built my endurance. Little by little, I got faster and stronger, and eventually convinced my physical therapist I could handle both the game and the parade.

Against everyone’s advice, the boots I wore to school weren’t wide enough for my braces to fit into. In my mind, the braces would look awkward and while I knew no one else would care, I did. So I wore the boots they didn’t fit into, and when nine AM rolled around and my feet were already hurting, I wondered if maybe I should have listened to my parents and everyone else who told me not to wear them.

The pain only intensified as the day went on, and I began to worry that I would trip and fall during the parade. That was the last thing I wanted to happen. But when I shared that fear with my friend Noah, who was walking the parade route with me, he promised to catch me if I fell. He eased my worries and made my fear completely disappear.

Noah blew me away that day. As we walked, he kept telling me how great I was doing. His unceasing encouragement helped me push through the pain and was my motivation as I became more and more tired. When we finished the parade, he looked at me and said, “We did it! You did it.” Not knowing how to tell him what his encouragement meant to me, I put my arms out and hugged him, grateful that he had been right next to me the entire time.

Noah and I right before the parade began.

When I think about homecoming last year, the parade is what I think about, not walking across the football field with my dad that night. That was amazing, too, but the parade showed me that I was stronger than I knew and that if you put your mind to something and work for it, you can make it happen. It doesn’t matter how much pain you’re in or how tired you are. What matters is the effort you gave and the people who were right there with you throughout everything. And it showed me that no matter what others think or even what you might think at times, no obstacle is impossible to overcome.